Lauren’s First and Goal Foundation
June 2004 – November 2011 Summary

Research Donations - $702,000

Children´s Hospital of Philadelphia, Children´s Brain Tumor Tissue Consortium - $147,000

A 10-year, $15-million initiative, the CBTTC will be working to collect, store and distribute tumor tissue for more than 200 types of pediatric brain tumors.

Johns Hopkins School of Medicine, Dr. Peter Burger and Dr. Charles Eberhart, Pilocytic/Pilomixoid Research Fund Study - $142,000

Learn more about the Pilocyctic Pilomyxoid Research Fund by reading the PDF below.

Dana Farber Cancer Institute, Pediatric Low Grade Glioma Program - $344,000

The attached is a report on the Pediatric Low-Grade Astrocytoma Program prepared for Lauren´s First and Goal Foundation.

Pediatric Brain Tumor Foundation of the US, Duke University Brain Tumor Center/Pediatric Brain Tumor Consortium - $54,000

Musella Foundation for Brain Tumor Research - $15,000

This donation was dispersed among these research studies:

• Dr. Robert Prins and Dr. Linda Liau, UCLA Medical Center, for project “Genetic profiling and immunotherapeutic targeting of Optic Gliomas”
• Dr. Timothy E. Van Meter, Virginia Commonwealth University, for project "A Molecular Signature of Pediatric Optic Glioma"
• Dr. Avraham Dilmanian, Ph.D. at Brookhaven National Lab, N.Y., for the project titled: "Stereotactic Microbeam Radiation Therapy of a rat brainstem gliosarcoma as a surrogate for optic glioma"

Pediatric Cancer Services Donations - $261,750

Angel 34 - $31,500
LFG´s donation was in support of the construction of Angel Field and pavilion, a retreat for pediatric cancer patients and families living in the Lehigh Valley.

Back Pack Resource Library- $2,000
In partnership with the Leukemia Lymphoma Society, a resource library of disease specific books and educational materials was developed and is being provided to all newly diagnosed patients and families at the Lehigh Valley Specialty Care Hematology/Oncology Clinic.

Camp Sunshine - $111,250
LFG donations continue to underwrite the expenses for families during Brain Tumor Week. The foundation is also contributing toward permanent naming rights to a new volunteer housing suite at Camp Sunshine (see the newsletter below for more details). This donation would allow for a continuation of the pet therapy and wellness programming at each camp session, and a permanent place for the volunteers who facilitate these services to stay during the sessions.

Children´s Brain Tumor Foundation - $10,000
LFG´s grant supported advocacy program initiatives and patient/family education programming.

Dream Come True - $5,000
LFG´s donation helped this organization grant more wishes for seriously ill children of the Lehigh Valley.

Hope is Here to Stay
LFG donated 60 copies of Hope is Here to Stay to pediatric neuro oncology treatment centers and pediatric cancer service organizations across the country. These were underwritten by a donation from Frank and Holly Santoro.

Kyle´s Peace - $10,000
Founded in memory of Kyle D. Kerpan, this program serves the patients and their families at the Children´s Hospital of Philadelphia oncology clinic. Kyle´s Peace organizes monthly visits to the facilities that include various activities, comfort services and even yoga.

Pediatric Cancer Foundation of the Lehigh Valley - $89,000
LFG helps this organization provide monthly patient/family/caregiver support groups as well as physical and recreational activities for pediatric cancer patients in the Lehigh Valley.

Penn Veterinary Vet Pets Program - $1,500
LFG´s grant supports this program that coordinates animal visits for children and their families staying at the Ronald McDonald House.

Splashes Of Hope- $1,500
LFG´s donation will help Splashes of Hope transform the bare walls of healthcare facilities into a comfortable, friendly atmosphere for patients, hospital staff and visiting family members. Creations are designed to stimulate the healing process by giving patients a soothing visual focus during their hospital stay.

Family Support - $71,249

The financial strain of a cancer diagnosis can present a tremendous challenge for families and caregivers. Families can apply for financial assistance for uncovered medical, housing, utility and funeral expenses through the oncology clinic social workers who work with the foundation to ensure that requests are valid and appropriate.

The foundation also sponsors a sperm banking program. The Foundation pays for banking and storage fees for patients, which are substantial and not covered by most insurance plans.