Lauren’s First and Goal Foundation, June 2004 – December 2007 Summary

 

Research Donations

 

Dana Farber Cancer Institute, Pediatric Low Grade Glioma Program - $65,000.00

 

Pediatric Brain Tumor Foundation of the US, Duke University Brain Tumor Center/Pediatric Brain Tumor Consortium - $54,000.00

 

Johns Hopkins School of Medicine, Dr. Peter Burger and Dr. Charles Eberhart, Pilocytic/Pilomixoid Research Fund Study - $30,000.00

 

In a collaborative effort with the Musella Foundation for Brain Tumor Research, $15,000.00 towards:

Dr Robert Prins and Dr Linda Liau at UCLA Medical Center, for the project titled: “Genetic profiling and imm2unotherapeutic targeting of Optic Gliomas”  - $50,000.00

Dr. Timothy E. Van Meter at Virginia Commonwealth University for a project entitled "A Molecular Signature of Pediatric Optic Glioma"  - $50,000.00

Dr. Avraham Dilmanian, Ph.D. at Brookhaven National Lab, NY for the project titled: "Stereotactic Microbeam Radiation Therapy of a rat brainstem gliosarcoma as a surrogate for optic glioma"  - $15,000.00

 

Pediatric Cancer Services Donations:

 

Angel 34 - in support of the construction of Angel Field,  a retreat for pediatric cancer patients and families living in the Lehigh Valley  - $20,000.00

www.angel34.org

 

Children’s Brain Tumor Foundation – in support of advocacy program initiatives and patient/family education programming - $10,000.00

www.cbtf.org

 

Camp Sunshineto establish a permanent Pet Therapy program for all camp sessions

www.campsunshine.org   - $18,250.00

 

Pediatric Cancer Foundation of the Lehigh Valley – Lauren’s First and Goal funds this organization to provide monthly patient/family/caregiver support groups as well as physical and recreational activities for pediatric cancer patients in the Lehigh Valley.  – $45,000.00

www.cancersupportgroup.org

 

Dream Come True:  A wish granting organization serving the children of the Lehigh Valley

 $5000.00

 

Family Support:

 

$20,751.07

 

The financial strain of a cancer diagnosis can present a tremendous challenge for families and caregivers.  Families can apply for financial assistance for uncovered medical, mortgage/rent, utility and funeral expenses through the oncology clinic Social Workers who work with the Foundation to ensure that requests are valid and appropriate.  The Foundation also sponsors a sperm banking program at the local oncology clinic at Lehigh Valley Hospital. The Foundation pays for banking and storage fees for patients, which are substantial and not covered by most insurance.  

 

 

 Brain Tumor Facts

(from the Central Brain Tumor Registry of the US 1995-1999)

  • Pediatric brain tumors have surpassed leukemia as the leading cause of cancer death in children.
  • An estimated 3,110 new cases of childhood primary brain tumors are expected to be diagnosed this year.  Of these new cases, an estimated 2,330 will be in children less than 15 years of age.
  • The five year relative survival rate following diagnosis of a primary malignant brain tumor is 32.7% for males and 31.6% for females.
  • An estimated 39,550 new cases of primary brain tumors are expected to be diagnosed this year.
  • An estimated 13,100 deaths will be attributed to primary malignant brain tumors this year.
  • The incidence rate of childhood primary benign and malignant brain tumors is 3.9 cases per 100,000 person-years.  The rate is higher in males than females (4.1 vs. 3.8 per 100,000 person-years).
  • The five year relative survival rates following diagnosis of primary malignant brain tumor by age of diagnosis: 0-19 years - 63.1, 20-44 years - 50.4%, 45-64 years- 14.2%, age 65 and older - 4.9%.

 

Links for pediatric cancer information and assistance

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Lauren at Angel Walk 2005, Angel 34 Foundation in Memory of Nicole Sheriff

 

Pediatric Brain Tumor Foundation of the United States: www.pbtfus.org

Camp Sunshine: www.campsunshine.org

Ride For Kids: www.ride4kids.org

Angel 34: www.angel34.org

Friends of Jaclyn:  www.friendsofjaclyn.org

Pediatric Cancer Foundation of the Lehigh Valley:www.cancersupportgroup.org

The Children's Brain Tumor Foundation: www.cbtfus.org

Virtual Trials: www.virtualtrials.com

American Brain Tumor Association: www.abta.org

National Brain Tumor Foundation: www.nbtf.org

The Brain Tumor Society: www.tbts.org

The Children's Tumor Foundation (formerly The National Neurofibromatosis Foundation): www.ctf.org

Lafayette College Athletics: www.goleopards.com